THREE THINGS TO KNOW ABOUT RARE, CHRONIC AND INVISIBLE CONDITIONS
Rare diseases, chronic illness and invisible conditions all present many, many challenges both to individuals and the medical community....
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zebrawearit
- Dec 6, 2022
- 3 min
Learning to Advocate For Yourself is a Long Process
Learning to advocate for yourself is a long process, and can be even more difficult when you have a rare, chronic or invisible illness....
zebrawearit
- Oct 12, 2022
- 2 min
Invisible Disabilities Week
“When I discover who I am, I’ll be free.” The incomparable writer Ralph Ellison wrote these words in his iconic work, Invisible Man - a...
zebrawearit
- Aug 30, 2022
- 3 min
Rare Disease Challenges: Three Consequences of Being Rare
What does it mean to be rare? For some people, it can mean standing out in a crowd. For others, it may mean standing against convention....
zebrawearit
- Jan 27, 2022
- 5 min
Thanks, Spittin' Chiclets!
There have been a few things I had to learn as a Canadian mother raising American kids - mostly remembering to care about the high school...
zebrawearit
- Dec 16, 2021
- 2 min
Don't Call Me a Fighter
Living With a Chronic Illness I have Ehlers-Danlos, a chronic illness, but I don’t want to be told to “be strong,” to “fight it,” or even...
zebrawearit
- Oct 19, 2021
- 1 min
When You Hear Hoofbeats...
A Symbol for Chronic Illness In 1940, the zebra became a symbol for rare diseases from a quote by Dr. Theodore Woodward: -When you hear...
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