Blog about Chronic illness & conditions

How to Talk About Your Invisible Illness

An invisible disability is a physical, mental, or neurological condition that is not immediately apparent to others, and may include...

Step Out in Your Stripes with WearIt.

“Never apologize for burning too brightly or collapsing into yourself every night. That is how galaxies are made.” ― Tyler Kent White We...

Rare Disease Day 2023

Rare Disease Day is about creating a “community that is multi-disease, global, and diverse– but united in purpose.” Rare Disease Day was...

Sometimes Hoofbeats Do Mean a Zebra

"When you hear hoofbeats, think horses, not zebras." This is a quote from Dr. Theodore Woodward. Its purpose is to educate doctors to...

THREE THINGS TO KNOW ABOUT RARE, CHRONIC AND INVISIBLE CONDITIONS

Rare diseases, chronic illness and invisible conditions all present many, many challenges both to individuals and the medical community....

Learning to Advocate For Yourself is a Long Process

Learning to advocate for yourself is a long process, and can be even more difficult when you have a rare, chronic or invisible illness....

Invisible Disabilities Week

“When I discover who I am, I’ll be free.” The incomparable writer Ralph Ellison wrote these words in his iconic work, Invisible Man - a...

Rare Disease Challenges: Three Consequences of Being Rare

What does it mean to be rare? For some people, it can mean standing out in a crowd. For others, it may mean standing against convention....

Thanks, Spittin' Chiclets!

There have been a few things I had to learn as a Canadian mother raising American kids - mostly remembering to care about the high school...

Don't Call Me a Fighter

Living With a Chronic Illness I have Ehlers-Danlos, a chronic illness, but I don’t want to be told to “be strong,” to “fight it,” or even...

When You Hear Hoofbeats...

A Symbol for the Rare, Chronic and Invisible In 1940, the zebra became a symbol for rare diseases from a quote by Dr. Theodore Woodward:...