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Empathy for Yourself in the Midst of Chronic Illness Flare-Ups
Perhaps the most agonizing part of chronic illness is the inconsistency, one day you feel fine and go do chores or work with no problem,...
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Kristy Hurley
3 min
Finding Strength in Challenges: How Ehlers-Danlos Syndrome Has Made Me a Better Parent
Life often presents us with unexpected challenges, and for me, one of those challenges was being diagnosed with Ehlers-Danlos Syndrome...
Kristy Hurley
2 min
Rare Diseases, Chronic Illness and Invisible Disabilities: Exploring Spoonie Theory and Being a Zebra
Living with a rare disease, chronic illness or invisible disability often involves finding ways to express and connect with others who...
Kristy Hurley
2 min
Even Celebrities Have Chronic Illnesses
When we think of celebrities, we often envision a life of glitz and glamor, seemingly untouched by the struggles faced by ordinary...
Kristy Hurley
5 min
The Start of WearIt.: Thanks Spittin' Chiclets!
There have been a few things I had to learn as a Canadian mother raising American kids - mostly remembering to care about the high school...
Kristy Hurley
3 min
Rare Disease Challenges: Three Consequences of Being Rare
What does it mean to be rare? For some people, it can mean standing out in a crowd. For others, it may mean standing against convention....
Kristy Hurley
2 min
Invisible Disabilities Week: When I Discover Who I Am, I'll Be Free
"When I Discover Who I Am, I'll Be Free" The incomparable writer Ralph Ellison wrote these words in his iconic work, Invisible Man - a...
Kristy Hurley
3 min
Learning to Advocate for Yourself is a Long Process: Introducing The DayBeacon
Learning to advocate for yourself is a long process, and can be even more difficult when you have a rare, chronic or invisible illness....
Kristy Hurley
2 min
Rare Disease, Chronic Illness and Invisible Disability: Three Things to Know
Rare diseases, chronic illness and invisible conditions all present many, many challenges both to individuals and the medical community....
Kristy Hurley
4 min
Ehlers-Danlos Syndrome: Sometimes Hoofbeats Do Mean a Zebra
"When you hear hoofbeats, think horses, not zebras." This is a quote from Dr. Theodore Woodward. Its purpose is to educate doctors to...
Kristy Hurley
2 min
Rare Disease Day 2023
Rare Disease Day is about creating a “community that is multi-disease, global, and diverse– but united in purpose.” Rare Disease Day was...
Kristy Hurley
2 min
Step Out in Your Stripes with WearIt.
“Never apologize for burning too brightly or collapsing into yourself every night. That is how galaxies are made.” ― Tyler Kent White We...
Kristy Hurley
4 min
How to Talk About Your Invisible Illness
An invisible disability is a physical, mental, or neurological condition that is not immediately apparent to others, and may include...
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